Monday, May 28, 2012

An Open Letter From a Cancer Mom


From one onco mom to another...


Have you ever had the feeling you lose all your Mom-powers when you walk into the hospital?

Have you ever felt that anger when they stick your child with needles and push pipes into him and inject him with poison and there's nothing you can do about it?

Ever felt the mistrust when you look into your child eyes and you know that you lied, that it will hurt?

Ever had the feeling of unimaginable pain when the child of another onco-couple loses the fight and you wonder when it's going to be your turn?

Ever experienced that feeling of speechlessness when your child comes to you and asks you when Jesus is coming to fetch her home?

Ever felt as if the Earth is trying to suck you in and you can't get out when those theatre doors close behind you?

Ever felt that you could murder someone with your bare hands when they make stupid remarks about your child?

Ever felt that you want to run away and sit in a corner and just forget about everything for a little while?

How do you know when you've reached the limit of the amount of bad news you can take? Everyone always wants to know how things are going and if you're still strong enough. It's as if they expect that you'll have a nervous breakdown any moment, and no-one knows what do do if Mom starts crying uncontrollably... except that they're standing there with the psychologist's number all ready... I mean freaking HELL!

Definitely my experience.

My life fell apart the day I found out my child has cancer. Every time you hear bad news another little piece of your heart breaks and it's as if you eventually have no more tears left. What you have in place of tears is an unquenchable rage and hardness, and unfortunately the person who phones first is the one to be attacked. Someone just has to look funny at your child's bald head and you feel like you're about to lose your mind and attack him. But then you get the ones who will actually tell you off for cutting your little daughter's hair so short, she looks like a boy. So forgive me if I don't always have my moods under control, but sometimes it's just flippin' impossible.

You don't always want to hear that you must be strong and you must keep believing; it's very difficult if you're constantly being given bad news. The cherry on the cake is when the doctors tell you that there's nothing more they can do for your child, you should just all go home and wait and carry on as normal. How the hell does a person go on as normal?

So, to every cancer mother out there:

  • You are allowed to be angry
  • You are allowed to shout and scream
  • You are allowed to be tired
  • You are allowed to get sick
  • You ARE ALLOWED to cry!

We are also just human, we don't have super-powers, being strong isn't our only option, we are going to cry and get angry, we are going to get sick and tired, so stop watching us like hawks and waiting for us to fall apart. For us there is only one thing to focus on and that is GOOD NEWS about our children. You live every single day for that extra bit of hope that today will be a pain-free/medicine-free day.

From Theresa Nieuwenhuis

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